Arizona Mayo Urologists for RALP or HIFU
I'm 48 w/ a 1.2mm lesion, 2 biopsies confirming a Gleason score of 3+4, 2.6 ongoing PSA. I was recently recommended to strongly consider either a RALP procedure or focal treatment (HIFU) in the near future to avoid the risk of the cancer spreading (vs. remaining on AS).
I really like Mayo AZ, but wanted to reach out to this forum to see if anyone has had either a RALP or HIFU procedure at Arizona Mayo. If so, which Dr did they choose, what was their experience pre/post surgery, etc. Thank you in advance for those that provide inputs, I have found this forum to be very beneficial in my learning process. Given I'm only 48, really worried about these procedures, Dr selection process .. given I'll be living with the results for many years to come (hopefully). Feel free to private message me as well.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
Did you have to travel to get to Mayo AZ. I live near Vegas so it’d be a long drive. I’m 77, my wife’s 73 both have sight in only one eye. Me cataracts, she MS. And where did you stay how expensive and how would you rate it. I have PCa and it’s not metastatic but it’s grown outside the prostate. Too old for surgery and IMRT gave me chronic diarrhea after only 8 treatments, couldn’t eat solid food for 2 weeks. I’ve been on orgovax for almost 4 months PSA and testosterone are undetectable. Thanks for your help about Mayo AZ anything would be helpful.
Mike
You don’t have to pay anything to stay at hotels When getting cancer treatment. Search the web for free hotel rooms for cancer patients. The American Cancer Society is one of the organizations that provides this. There are other organizations that do the same thing. You just need To make an appointment ahead of time.
I’m 77. I was on ADT for eight years. Only reason I’m off is because I’ve been on it so long my testosterone Probably won’t come back. My brother was one year younger than you when he had five sessions of SBRT for his prostate cancer. Hopefully the drugs you’re taking can keep you going for many years. You might want to look into getting SBRT instead of IMRT. There are many fewer sessions, though the radiation is stronger. Not sure that it’ll really work for you, but it can’t hurt to ask. If you get SpaceOAR or Barrigel, or BioProtect they can protect your rectum and bladder during radiation.
Thanks Jeff, they say Im not qualfied for SBRT because my Pca is outside of my prostate.
Thanks for the heads up about accomadations, I did not know that. You were very helpful.
Mike
They use SBRT to zap metastasis outside the prostate. They do it for lymph nodes and bone metastasis. Theoretically, they could do his prostate and also then zap the visible metastasis.
They are now using SBRT to treat the prostate bed, Usually called salvage radiation, They might be able to do that for him, it has many fewer treatments.
It might make sense to get a second opinion from another center of excellence or a Genito Urinary Oncologist. See if there might be another option.
Thanks I’ll look into it. Vegas is a healthcare desert. I’m going to contact MAYO AZ and see what information they can give me. Very helpful, thanks again
Mike