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Microscopic Colitis

Digestive Health | Last Active: 3 days ago | Replies (66)

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@margot6425

Hello Everyone,
I just read all the letters and decided to join the discussion group. Lots of interesting things to read and share. I am an 85-year-old LOL in relatively good health except for osteoporosis, and microscopic colitis since Oct. 2023. I was diagnosed after 2 months of diarrhea up to 10 x day, miserable life and lost 12 pounds.
I am an active person. I like to lead kayak trips (but not with 10 diarrhea/day!) in summer and hikes in winter. I was put on Budesonide 3 mg (or more if needed) a day. Like a miracle! It worked as soon as my colon filled up again after the colonoscopy. I started on BRAT diet, then started adding things like roasted chicken, fish, scrambled eggs, tuna with mayo, and things went well.
I had occasional flares when I did too much food or tried commercial soups and frozen dinners. I am doing very well now if I stick to real food without additives. I love fresh fish (I live on Cape Cod) and seafood. I do occasionally get constipation which I hate worse than diarrhea!
After my colonoscopy I started keeping track of my poops, using the BRISTOL STOOL SCALE. Have any of you used this? East to look up online and print. Someone must have done some creepy research, but it is very helpful: there are 7 Types of stool starting with Type 1 (difficult to pass, hard pellets) all the way to Type 7 (brown water, no solids, only liquid). Each are illustrated with pictures. I kept a daily record in my bathroom of all such events on a clipboard I hid behind my bath towel. My best days were Type 4 (smooth sausage and easy to pass).
I am running out of space I think - see you all later.

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Replies to "Hello Everyone, I just read all the letters and decided to join the discussion group. Lots..."

Hi @margot6425 , and welcome to Mayo Clinic Connect. Thank you for providing a summary of your experience through diagnosis and finding therapy that works for you. Short of not having to deal with osteoporosis and microscopic colitis…success! I hope you are back to leading kayak trips.

It sounds like having a colonoscopy was the reset you needed, and have really focused on food as medicine since (and being active). I love it!

Do you mind sharing, what brought you to Connect?

Your experience is very similar to mine - I was diagnosed in October 2023 also and have had great results with Budesonide. If I eat too much, or too much of things that are hard for me to digest, I get some diarrhea but otherwise I'm doing well. I also track my bms with the Bristol Stool scale which my GI appreciates when I see her and can report exactly how I have been doing. I'm 70 and very active and intend to remain so for as long as possible!