Hi Jeff, we didn’t appreciate they cannot see metastatis below 5mm, with PET scans but thanks we will now know for the future.

We do understand that not wanting ADT (currently, he is not ruling it out for the future, but may try a different type), can shorten your life but sometimes quality of life is far better than quantity if that quantity keeps you in abject pain and not capable of doing anything.

We do have personal knowledge of prostate cancer with my father (died with it not of it) and our brother in law lasted for 10 years after being given only 1-4 years, he had every treatment going including many experimental ones. He was late going for a test by which time it was everywhere. He was lucky in that he didn’t have the big side affects of ADT just the minor ones and didn’t have an aggressive prostate cancer. We were with him supporting him throughout his treatment to the very end. Everyone is different and I’ll support my husband with whatever options he chooses, rather than try to make him prolong life if it has no quality for him.

Our oncologist is excellent and he has PSA tests every 6/8 weeks and subsequent scans etc. Thankfully she is fully supportive and often rings randomly to find out how things are etc. We cannot fault her at all.

Good luck with your continuing treatment.