← Return to Advice for upcoming myectomy?

Discussion

Advice for upcoming myectomy?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (8)

Comment receiving replies
@mnsportsmanjr

Dr Dearani did mine back in 2016 and he was super fast! He told my family it would be 3 to 4 hours but was done in 1.5 hours.

As far as advise, I would recommend some hand signals between you and your family. When I was having my breathing tube removed I would stop breathing so they had a heck of a time getting me to breath on my own. During that time I wanted to say so many thing to my family but couldn't. Simple things like I wanted my wife's hand, or I wanted to wipe the spit from my chin/mouth. They are useful as well for when you are in too much pain to talk, but want something like water, or food or more meds.

The nights will be the worst. The nurses tended to not be on time with my meds, so I would sit there in pain until they came in (the call button fell from my bed when I was sleeping). With no where for my wife to sleep I was alone at night. If I could do it again I would have fought harder for my wife to be able to stay at night so I had someone to advocate for me to the nurses.

If they don't give you a heart pillow, have someone get you a fluffy soft pillow to hold against your chest. Even the heart pillow they did give me was a little too thin I thought. It will be your best friend if you have to sneeze or cough.

Your arm/chest/upper back muscles will become VERY weak almost immediately. Within the first week I pulled several muscles in my rib/back on my right side just trying to push myself up from the lazyboy chair. Even if you feel like you can get up on your own, have someone assist you so you don't end up back in the hospital back on IV narcotics for pulled muscles causing you not to be able to take a full breath.

Best of luck with your surgery! You are in the best possible hands!

Jump to this post


Replies to "Dr Dearani did mine back in 2016 and he was super fast! He told my family..."

@mnsportsmanjr describes his experience well, that said, each of us had a different experience. I suggest that anyone considering or having surgery read the many stories in the What I Learned From My Open Heart Surgery section of this blog. For example, I had no pain, on Tylenol only after the first day, breathing without a breathing tube and talking on my own for a short while about 4 hours after surgery, I was in good physical shape going in - no trouble rising from sitting to standing at all, but getting out of bed was a real challenge! I like how @mnsportsmanjr suggests having an advocate stay with you 24/7 if you feel that you need it. Nights were the worst, indeed, people coming in to take BP, draw blood and the like was downright annoying and don't forget the sequential compression device (SCD) or an intermittent pneumatic (IPC) around legs at night to prevent blood clots. It kept me up all night on the last night in the hospital.