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Obliterative Bronchiolitis (OB) vs. ILD or CLD?
Lung Health | Last Active: 1 day ago | Replies (29)Comment receiving replies
Your symptoms sound like just what I have been going through with my COPD! Sometimes I cough so much and get so weak! I would certainly entertain and suggest that you seek evaluation/treatment at a high level of care facility. Not sure where you live but the healthcare facilities I would consider are Vanderbilt, John Hopkins, Duke, UNC, Also, do some research into Zephyr Valves (these will address the O2 trapping). You mentioned ILC, where and what is that. And am not sure about the comment that it's "too soon" for a lung transplant. You definitely could benefit from an in-depth evaluation from a large pulmonary program that has a large and diverse Pulmonary Team.
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Hi! Sorry I'm just now seeing this! I went to the Duke Lung transplant center in April & was told that it's too soon for a transplant, although I have to go back in October to be reevaluated for the transplant. And I have an appointment for a 2nd opinion at Duke with a pulmonologist at the end of this month. My pulmonologist initially said I have COPD and, technically, BO falls under that umbrella since it's such a broad scope/catch all phrase. And BO is a lung obstruction.
I'm headed to the VCU interstitial lung disease center (ILD) this week to be evaluated there & to receive a 2nd opinion. Also, my pulmonologist referred me to UVA as well & my appointment with them is next month. Technically, by the end of August, I should have 3 ( 2nd) opinions.
I'm slightly afraid of getting a biopsy but my pulmonologist says that I'll need one to confirm the diagnosis. The hope is that either UVA, VCU, or Duke will perform the biopsy. According to Duke, my lungs are inhaling oxygen & exhaling CO2 & are doing their job. But my PFT shows lung capacity at 30% so I have no idea what criteria one would have to meet in order to qualify for the transplant. My Dr. said that transplant teams prefer that patients referred to them have a diagnosis before they will consider a transplant. But my visit with the transplant pulmonologist there left me confused. Been a long road, though. Thanks for your input. 🙂