No improvement in Dexascan after 11 months on Evenity

I am sorry to hear all you have been through. I am 46 years old and also a marathon runner. I was just getting ready to start training for a 50 miler, but on Friday got diagnosed with osteoporosis in my spine. Hips and femur seem to be ok at this point (woo hoo). Osteoporosis is awful for anyone at any age, 46 seems a bit early but hey. My question is did you keep running after learning you had osteoporosis? Running is really who I am but it is so high impact so worry a bit. I am supposed to see a specialist but am told it will take a year to get into one. Really don't want to wait a year to see if I should be running or not.

I would consult with Dr. Kevin McCormick if you haven’t done so. He was an Olympic runner and has had osteoporosis. He might be able to help diagnose these issues.

I am female, 86 years old. I have been diagnosed with GPPD. I am struggling with severe pain. I have circulation, joint issues (knees and hip) and scoliosis. I have tried many of the GPPD meds - all causing severe diarrhea. I do see a local rheumatologist but not getting much a advise other than the meds I can not take.

Advil (no w/acetaminophen) seems to be my best pain reliever. I am also starting a new low protein and w/certain grains and vegetables. I keep reading conflicting diet plans.

Thank you kindly for your advice. Sally Metzger

Are you able to provide the functional nutritionist in Cleveland?

I thought it was 1 gram per lb. Which would be 120 grams a day?

RE: DEXA 11 months after Evenity. My osteo specialists says it takes about 2 yrs to show a significant difference on DEXA

First, it’s too short term however it seems like you’re only on one of the bone medicines when you should be on too. You should be on one which increases the bone density and the other which slows down the bone breakdown. I am on RECLAST as well as TYMLOS. Not at the same time of course and I am now taking CTX and P one NP tests, which are showing a trend going in the right direction. I’ve learned many things over 25 years of DEXA scans. My protocol will be one an annual infusion of RECLAST, then two years of daily injections of TYMLOS, then back to two annual infusions of the RECLAST, and then that’s supposed to stay effective for the following 10 years. That DEXA scans unless you were doing them on the machines with the tubular bone score TBS software are not reliable. Your bones are not reliable. Some can be strong and some can be paper thin. I was pronounced normal after having had osteoporosis 25 years ago and then while in cervical surgery, my neck vertebrae bones fell apart being paper, thin. It was a big shocker for everyone! There is an amazing amount of information here on the bone medication’s. I suggest you search through it all and educate yourself for what you think might work for you and work with your endocrinologist and if you don’t have a good one, get another. There’s no quick fix. I decided to go back on bioidentical hormone replacement therapy do the protocol for the bone building intensity, medications, and suffer with reactions sometime. Those bad reactions in my mind are because my body really needs the medication and it’s doing its job. After I had a really bad reaction to our ECLAST, I found that my next infusion can be slowed down and they will give me Tylenol and I will drink lots of water before hand and I won’t have had surgery three weeks before. I also feel like the bone medicines or work so my next rECLAST infusion will not have the severe reaction I experienced. Getting the test after two years to know that my body is doing its job and responding to the medication’s is supportive. I had reactions to the TYMLOS for two months and the nurse practitioner said hang with it they will magically be gone and they were! There is lots of information here about how we all suffered on the bone medicines and how we dealt with it. I want to be strong and not worry about falling. At 68 I know six women about my age who fell over the last year and all of them fractured their bones. I don’t want to be that. Your bones can’t be strengthened by foods you eat because your digestive process doesn’t impact your bone strength directly. It’s the things that go in through your bloodstream that are the icky medicines that none of us like and the hormones that help us stay off, degenerative conditions..

And exercise! I forgot to mention that exercise is the best thing because it gets the medicines and the nutrition and everything into your bones. So walking a couple times a day or doing resistance exercise is your best bet.!

I am sorry that was your experience. After 11 months of Evenity, I had significant gains ranging from 6.8-8.5, in hips and spine. Following it with Prolia and then Reclast, both of which I had before with few side effects. I hope your doc can find a plan that works for you.