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So scared: Brain tumor on watch and wait has grown

Brain Tumor | Last Active: Dec 8, 2022 | Replies (52)

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@tallygirl

I hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?

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Replies to "I hope Mayo clinic finds some answers and relief for you I certainly will follow your..."

I go to the Rochester MN campus. They are amazing. I'm so blessed to live in a state with such an amazing hospital. They saved my life. My neurologist told me my tumor was inoperable, but boy was he wrong. My neurosurgeon removed my tumor plus some and I was discharged home less than 48 hours later. I am so blessed!

I go to the Mayo in Jacksonville Florida. Have a wonderful neurologist working on my headaches and looking to get a neurosurgeon there. I also see an endocrinologist there for my thyroid. I am being watched for my 9 nodules, one being very concerning they said. I go in April for that and will have to have blood work, a CT scan and something else....I forget....Wishing you the best. Praying hard for you....

I did look online and found a neurosurgeon from MN Mayo has relocated to Florida Mayo. I may look into going to him. Great credentials and awesome reviews.

What's his name? What part of Florida are you in? I'm in Fort Lauderdale and look o king for right Dr.

Hi Linda...I live in the western part of the panhandle. Pensacola...The doctor I'm looking at that came to Mayo in Jacksonville is Dr. Mohammad Bydon. Google him and see what you find out. Let me know what you find out. Hugs!!!

Thank you! Will do big hugs to you too let's keep n touch.

Hi Linda,
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Hi,
So happy for you!! Who is your Doctor at Mayo? My sister who has several new meningiomas has an appointment at Mayo July 26 for a third opinion. We are trying to research Doctors there. We live in Atlanta, but she has been getting conflicting opinions here from 2 different neurosurgeons.
Thank You,
Nancy