Very comforting and informative, thank you! I have not been officially diagnosed for PMR but have all the symptoms you’ll have discussed. I believe I’ve had several episodes over the past 5+ years but that pain was for the most part in my hips and back. On my 63 bday I went to bed with what I thought was a sinus infection in my head but awoke to pain in head, neck and shoulders. I’d had pain in these areas before but nothing to this level.
While I await more testing I’ve begun to dial in on the prednisone amount needed to manage / function and also the mental aspect, challenging! I’m not sure how I triggered this but my bloodwork had been getting better by the month due to strict diet management provided by my health and wellness Dr.

My wife and I got Covid in Dec of 2019. My neighbor had just gotten back from a three week trip to china and was very sick for most of his visit. At the time he was 39 so it knocked him down but nothing like it did to us, at the time 52 and 57. My wife ended up with heart failure, lost 60% use of the left side of heart. I can’t pinpoint my first girdling experience but I really think it was during or shortly after having Covid. Has anyone else experienced the possibility of Covid correlation to PMR? By the way, in Dec of 2019 we did not know the term covid yet but it’s been proven to go back as far as Nov 2019. That’s right, we got it fresh off the boat, lucky us!

Very happy to have found you’ll, gl!