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Hi Honey, yes I had 9 maintenance treatments. The treatments are hard on your body and I did have a lot of burning and irritation although I never had a UTI. They would do a urinalysis before each treatment. The chemo can be very harsh on your body. I was very fatigued. I’ve been off the treatments for 5 months and I’m beginning to feel better now. I developed pelvic prolapse and it seems to be healing now that I’m not on treatments. I also found that special soap and gels for women helped to ease the burning & dryness. It helped soothe the pain. I hope you can see your gynecologist soon and can help you with your situation. I’m praying for you!

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Replies to "Hi Honey, yes I had 9 maintenance treatments. The treatments are hard on your body and..."

Deb,
Thank you for sharing this. I've been kind of hard on myself about being so tired, and my six once/week treatments were over at the end of May. I've done some other reading, but hearing someone here talk about 5 months of effects and finally starting to feel better helps me to not feel like such a 'complainer.'

If I go out of the house on day 1, on day 2, I am shaky and too tired to do much. I will feel OK while I am out, but the price is too high the next day. I will often fall asleep without being able to stop it. I still run my own business and do that with Zoom sessions, so now that is just about all of my activity.

As a board member for a community service organization, I serve as a liaison to members about our upcoming activities, but I know I cannot afford the energy to attend any events I am promoting.

I'm getting comfortable with the word "no".

I think we all should be comfortable with "no" to what is too much for us, and "yes" to putting our needs first!