Reclast infusion

@ dannyandebbie

I have rheumatoid arthritis and am in daily pain. My endocrinologist wants me to have Reclast for my osteoporosis. I’m terrified to take it. I can’t take any of the oral meds due to GERD. I’m thinking of just doing nothing as far as medication goes. Has anyone else not done medication for osteoporosis?

I'm happy to hear that your pain is finally subsiding some, and hope that it won't be too long before it's gone. Before this happened, I had no idea how bad pain could get and remain a constant problem. I was always able to continue with my life despite bouts of pain for various reasons. My heart really goes out to all the people who are suffering with pain.
I'm still really not sure why I'm having so much pain. My whole situation seems very strange and makes no sense to me. My pain starts when I go to bed, intensifying during the night, and by early morning I have to get out of bed because everything in the lower half of my body hurts so much. When I get up, I can barely walk because of the pain.
As the day goes on, and I'm more active, the pain lessens, so that by the evening I'm feeling almost back to normal, although the pain is still there.
The doctors say that the pains in my lower back, buttocks, hips, thighs, knees, and legs are all due to narrowing of my nerve and spinal canals and recommend I get two epidurals in my back.
Usually, people who have such lower back issues, have pain caused by walking and/or doing physical activities. My pain gets better after I do physical activities. I wish I could find a doctor who would really listen to me and look a little more deeply into my symptoms. It may be that my pain is caused by something other than my back, especially since my back issues were diagnosed several years ago. During that time, I was leading a full, active life, walking, exercising, doing all my own housework and gardening, traveling, etc. Now, it is difficult for me to do most things without the pain overcoming me.
I feel that the doctors are not really listening to me and maybe there is some other reason for why the pain is so excruciating at night and when I first get up. My hope is that, like you, the pain will gradually lessen so that I'm back to my "old" self.

I had my first and last reclast infusion last August. I want to find if others had the same reaction to the treatment as I did. 5 days after the infusion I developed terrible swelling in my joints, and could barely walk. I was in so much pain. The swelling only relented after a several days on a very powerful prescription anti-inflammatory med. I am still in pain daily, mostly in my hips and lower back. I have gained weight and am less inclined to exercise because it just hurts more. Has anyone else had this experience?

Not in my hips but both shoulders and my left foot, 11 months later and still quite sore! I have found the more I use my arm the less they hurt, but Always feeling very lame and sometimes I cannot walk on the left foot at all. I was just scheduled to go see a Rheumatologist, not until 01/29/2026 unless they have a cancellation! Long story short, as much as it hurts, I find the more active I am the less they hurt; maybe because my mind is more occupied with what I am doing and less on the pain. I did report this to FDA!
If interested!
If you feel that you are suffering from these medications long term to report that to FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with ev

I had my first and last reclast infusion last August. I want to find if others had the same reaction to the treatment as I did. 5 days after the infusion I developed terrible swelling in my joints, and could barely walk. I was in so much pain. The swelling only relented after a several days on a very powerful prescription anti-inflammatory med. I am still in pain daily, mostly in my hips and lower back. I have gained weight and am less inclined to exercise because it just hurts more. Has anyone else had this experience?

Thank you for responding. Did you have extreme joint swelling around your affected joints at any point? The swelling in my knees, legs and one ankle was so drastic a few days after the infusion, I couldn't bend them at all. I was traveling away from home and had to return to see my doctor. It was frightening. Exercise does help now but getting up in the morning after lying down all night is very painful. I will report to the FDA. Again, thank you!

No! No swelling, nausea a lot at first, better now, maybe a few times a month!