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So scared: Brain tumor on watch and wait has grown
Brain Tumor | Last Active: Dec 8, 2022 | Replies (52)Comment receiving replies
@rosesareredmylove2016 Thanks for sharing your story of surgery and recovery. Perhaps others in our group would be interested in learning more about the type of benign brain tumor you had, did the pathology report give it a specific name? Once again, thanks for sharing, I applaud the exceptionally positive attitude that you share! Blessings to you. Teresa
Replies to "@rosesareredmylove2016 Thanks for sharing your story of surgery and recovery. Perhaps others in our group would..."
I was happy to hear that all is well. It is interesting to hear your tumor was a Scwannoma, as that is what they call acoustic neuromas. I had one done by Gamma Knife Radiation in 1997. The good news is that they do not grow back and usually shrink as we get older. I also was left with no hearing in my left ear and imbalance issues, but that is a small price to pay for what could have been. Sending you blessings and prayers.
Just a point of clarification...though the majority of acoustic neuromas (also called vestibular schwannomas) usually do not grow back, sometimes they do. Therefore, most doctors recommend continued follow ups every so often forever. I had my tumor surgically removed in 2002, and I continue to have scans every five years or so even though I am 15 years out.
hey @cynaburst.
Yes you are sooo right. Its been 2 years since my surgery, and I have been having a MRI once a year to see if the tumor is growing, and although my Surgeon said they rarely grow back...HaHa...Mine is growing, so now I watch for signs effecting my balance, eyes or other issues its growing could cause..Saying Vestibular Swannomas never grow back is like NOT true.....
Rosesareredmylove - do you think it could be shrunk using Gamma Knife radiation? It's not as invasive as surgery and I know at the Gamma Knife Center in Providence, RI, they did this. I had mind done there and it has been shrinking every year. Now I only have MRIs every 5 or so years and it is still shrinking. Just something else to throw into your idea cart! Wishing you well as always.
Hi @amkaloha:
I've been told if the tumor continues to grow back. I will have the option of spot radiation to remove it from my brain stem..The issue is., its resting on my nerves and my surgeons are hesistant at this point..
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Hello @hopeful33250:
Very nice to hear from you. My Tumor was a Scwannoma.Its a begine tumor.1 in 100.000 people get them.Its been a journey. It was non cancerous.Thank the LORD... Although I am left with no hearing in my left ear and imbalance issues. Every day is different. I am well and try to be positive each and every day...