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Blood Cancers & Disorders | Last Active: Jun 3 11:22am | Replies (12)

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @prayerful4ever I agree with @suetex, ‘predictions aren’t reality’. If I paid attention to my ‘odds or survival rate’ at my time of diagnosis with AML, I wouldn’t be here today. That was 6 years ago…with treatment, I’m cancer free.

Searching online, while there can be some great informational sites, not everything you read will be relevant to you! Each case is different. And often the ‘survival rates’ listed are for patients without treatment. Doesn’t necessarily reflect your CLL or what the survival rate could be with treatment.
CLL is one of the most treatable forms of leukemia…when necessary. You haven’t even reached that stage yet so my suggestion is to not go looking for trouble. It finds us on its own anyway. 😅
I’m not being cavalier about this, truly. But having been there myself, it’s better to wait and speak with the doctor before trying to interpret results ahead of time. And in reality, none of us know how much time we have left! So we have to live every day to the fullest until something actually takes us out! Worrying about ‘what if’ robs us of precious time.
I’ve posted this before but it’s one of my favorite inspirational quotes. I found it so helpful in daily positive affirmation:
“Fear does not stop death. It stops life
And worrying does not take away tomorrow’s troubles.
It takes away today’s peace. “

Was your oncology appointment today?

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Replies to "Hi @prayerful4ever I agree with @suetex, ‘predictions aren’t reality’. If I paid attention to my ‘odds..."

Lori, you are right on! And that quote is a keeper. It has been over 3 years since my mutations were found and one was "associated with poorer outcomes." So, I will continue to live life one day at a time, thank you very much.