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I actually have not noticed anything out of the ordinary. My numbers started climbing back in 2022, and I was sent to an oncologist who told me that I had CLL and was going to have to join the "Watch & Wait" club. Everything has been pretty steady until my last three draws where my numbers are starting to move, I am starting to have swollen nodes, and now with this last draw some of the lymphocytes have prolymphocytic appearance which immediately caused me to go online to research what that might mean and I find data stating that I now only have 1-3 years to live, when I was being told that I would probably live into my 80's.
Cancer sucks.
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Hi @prayerful4ever I agree with @suetex, ‘predictions aren’t reality’. If I paid attention to my ‘odds or survival rate’ at my time of diagnosis with AML, I wouldn’t be here today. That was 6 years ago…with treatment, I’m cancer free.
Searching online, while there can be some great informational sites, not everything you read will be relevant to you! Each case is different. And often the ‘survival rates’ listed are for patients without treatment. Doesn’t necessarily reflect your CLL or what the survival rate could be with treatment.
CLL is one of the most treatable forms of leukemia…when necessary. You haven’t even reached that stage yet so my suggestion is to not go looking for trouble. It finds us on its own anyway. 😅
I’m not being cavalier about this, truly. But having been there myself, it’s better to wait and speak with the doctor before trying to interpret results ahead of time. And in reality, none of us know how much time we have left! So we have to live every day to the fullest until something actually takes us out! Worrying about ‘what if’ robs us of precious time.
I’ve posted this before but it’s one of my favorite inspirational quotes. I found it so helpful in daily positive affirmation:
“Fear does not stop death. It stops life
And worrying does not take away tomorrow’s troubles.
It takes away today’s peace. “
Was your oncology appointment today?
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Predictions aren't reality, so what do they know. Just curious if you have had a bone marrow biopsy. I have and they aren't the monster that they are reported to be. Be sure to ask for feed back if it comes up.