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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 2 hours ago | Replies (1229)

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@jhmontrose

Jayson, I can relate. When I had my initial diagnosis in 2015 I saw so many GI docs and most of them were so incredibly dismissive. My first one seemed to have only one answer: take more prilosec, take protonix, double up on protonix. So I finally said to him "is that your only answer, take more acid suppressants?" and he got visibly angry at me and said "do you want to get well?" So condescending. Then I had an ER doc accuse me of just being a drug seeker and sending me home after zero tests. After doing every GI test imaginable I finally saw an RN at an urgent care office who looked at my history and offered to make some calls for me on her lunch break. She set me up with a young GI specialist who ordered a HIDA scan (all clear) and the mesenteric artery ultrasound that finally diagnosed me. If it wasn't for those two, I have no idea how much longer it would have gone on.

Unfortunately, like you, I am having a recurrence of symptoms after 5 years. Last night was the worst night I've had since 2015, sharp pain building up, had to take an oxycodone and sleep propped up, then I still woke up nauseous. That has been my worst symptom and thankfully this time around, I am not having too much trouble eating. Once I get up and move around the nausea fades but pain persists. I'm getting a nerve block done next week and hoping the pain care center will also offer me some help over the next few weeks while I wait for what I expect to be a second surgery.

As far as seeing a new surgeon, I would at least google search and see what other patients have reported. The one I've been consulting is very young but has a special interest in MALS. Another surgery is scary to think about but so is living with constant bouts of pain/nausea.

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Replies to "Jayson, I can relate. When I had my initial diagnosis in 2015 I saw so many..."

I can only imagine how your feeling and going through. My symptoms started back up with the pain and discomfort that came from eating. The pain starts below my sternum and rib area. I get a burning and knocking the air feeling. Nausea and having very low energy due to my pain. Again I'm hopeful that my new vascular surgeon helps in this journey to getting well. However, if she doesn't then my general surgeon said the next option would be to have another open surgery to remove the scar tissue. He stated that he has never done two open surgery before and it's very risky to do. My first surgery was a 4-hour ordeal. The ligament that he had to cut was extremely difficult to remove. He said the risky part was the surgery would more than likely be double the time because of the scar tissue that is built up. Well, I pray that your pain and discomfort go away when you get the nerve block.

My surgeon, Dr. Hsu in Stamford, Ct was amazing. He has a 92% success rate with MALS and is a Nuevo-Vascular surgeon. He has done almost 400 MALS open surgeries. I chose to fly from Phoenix to Ct. bc I didn’t want to do this again. It’s worth the extra effort. Hope you find someone.

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