Im not really sure about the progression. Over the last 3 years I have been experiencing some changes. But more recently is the loss of sensation. I feel pressure but don't always feel anything else. Im not feeling anything cold on my feet up to under my knees as well. If I was going to describe it, it would be like a falling asleep feeling.
I have had to see multiple doctors and really advocate to get this far. I was told everyone is different about how fast or far sfn impacts someone.

Hello @misfire, I would like to add my welcome to Connect along with @janeenelizabeth and others. I think we all get a little scared about the progression when we find out we have neuropathy. What @janeenelizabeth says about being our own advocate is so important. One of the best things we can do to help ourselves is to learn as much as we can about our condition and what treatments are available that might provide some relief.

If you haven't already scanned through the discussions in the Neuropathy Support Group, I'm sure you will find others that might help with your neuropathy journey - https://connect.mayoclinic.org/group/neuropathy/.

The Foundation for Peripheral Neuropathy has a lot of great information for learning more about neuropathy and what helps - https://www.foundationforpn.org/living-well/
Have you looked into any complementary or alternative therapies?

I am 82; work out 1-2 hours daily...have small fiber neuropathy for 3 years. It has progressed from my feet to thighs. EMG is worse each time BUT I don't have pain. I do have vibrations in legs to feet if my butt is touched or top of thighs is touched. This is very uncomfortable and I am worse at night with heavy legs and also often very cold feet. I have a vague autoimmune diagnosis but the three neurologists (last one Columbia University, NY doc have told me after extensive bloodwork I have no autoimmune causes for the neuropathy. My auto immune disease started ten years ago after contracting an infectious disease in Africa. Was on hydroxchloroquin for years but never had any lupus symtoms; just labs that showed antibodies. Ironically now, my labs are normal except for my ANA. I went off the hydroxy at suggestion of another neuurologist (Medical University of So. Carolina). This was also a great doc who did extensive antibody labs which took 3 mos to get results; all were negative. I have had epidural injections in L4,5 with no results (not surprising). I have had ultrasounds of blood vessels in legs; all normal. My cause is not diabetes, chemo or alcohol and not autoimmune. SO.....after all of my advocacy with the best neurologists, I am left as so many of you...no treatment or cure. I am on a 2 dosage of gabapentin at night and seems to help prevent severe cramping I will often have at night. My doctors tell me I have excellent strength, tendon reflexes and range of motion. I have been advised to do impact exercises which I do almost daily as well as cardio strength and lower body strengthening as well. I am trying to reconcile this disability. It affects my balance but then I am 82. Supplements is a whole other story. B6 is important but not an overdo. I take Magnesium and D3 and HMB. Have no idea if they help. My blood work for vitamins is in normal range. I appreciate a place to tell my story and to hear from other sufferers of this terrible disease. THERE ARE SO MANY OF US!!

Placing my feet on a vibrating platform really helped me. LifePro is a company that makes this type of equipment. Available on Amazon.

You are very low in COBALAMIN, B12. Alcohol and or poor diet. Our nerves are coated with a protecting fat called MYELIN. Take METHLCOBALAMIN as it is the most easily absorbed of the 3 types. And stay off the booze. It irritates our 20 ft long intestine, stopping B12 absolution.
Good luck.