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Kaposi’s Sarcoma: Just want to talk
Sarcoma | Last Active: Aug 8 9:08pm | Replies (34)Comment receiving replies
Hello
I am 58 years old and 2 years ago I was diagnosed with classic Kaposi's Sarcoma HIV negative
. Coincidentally or not, the disease appeared in me after the third dose of the Pfizer vaccine for covid 19. What country are you from and what treatment have you used so far?
What stage is the disease?
I went to Italy to see Dr. Lucia Brambila, the doctor who classified the disease according to the lesions.
I have stage 2b out of 4 stages. I only have lesions on my lower limbs. I had radiotherapy in 2023 and 2024.
The doctor forbade me from having radiotherapy and recommended compression stockings and Imunmens, a medicine that contains vitamin. Give me an email address so we can talk more easily.
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Hi adi-
My personal email is glenn.baker2043@yahoo.com for easier communication.
As i stated previously stated am HIV+ for 34 years but recently developed KS in October 2020
I have not associated my diagnosis with Covid vaccines but could have been a trigger - was never discussed with oncologist as KS is known to signify a progression from HIV+ status to AIDS, I have only had chemo treatments with the drug Doxil - has been very effective - radiation was mentioned but oncologist said results were usually not as good as with the Doxil - I am in remission and have been for over a year now. 6 month checkups are the norm now.
I am in the US and my treatment was at HUP - Hospital at the University of Pennsylvania.
Get in touch if you'd like - always available for chat.
Glenn