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Replies to "Yes, I have been seeing a Oncologist since 2022, but they just have me on Watch..."
Blood Cancers & Disorders | Last Active: Jun 3 11:22am | Replies (12)
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Yes, I have been seeing a Oncologist since 2022, but they just have me on Watch & Wait, I see my oncologist tomorrow to go over latest blood draw results.
I am just here on this sight looking for insight from others who might have gone through or are going through what I am and to find out what I might be looking at.
If I am in the wrong place, I apologize and will look for information, insight, guidance and support elsewhere.
Also, I am not sure that I have PLL, it is just what I have come up with after seeing the notes that the lab technician posted the statement: "Some of the lymphocytes have prolymphocytic appearance raising possibility of transformation."
Replies to "Yes, I have been seeing a Oncologist since 2022, but they just have me on Watch..."
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Hi @prayerful4ever You’re in absolutely the right place. We have your back here! ☺️ There are several members in Connect who also have PLL. I found quite a few discussions and not sure which one is relevant for you. So here is the list I found so that you can choose. https://connect.mayoclinic.org/search/?search=PLL
I was just wanting to make sure you’ve been under the care of an oncologist for your CLL/PLL instead of your primary care physician. While our PCPs are great to have for our go-to physicians, they don’t always have the depth of knowledge needed for cancer care.
I know it’s difficult when blood or test results pop up in our patient portals and we have to wait for our doctors to interpret them for us. I always get antsy! Hopefully the meeting with your oncologist tomorrow will provide some answers for you and bring peace of mind.
Please let me know what you find out, ok?