← Return to HCM-ers: Introduce yourself or just say hi

Discussion
Colleen Young, Connect Director avatar

HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 14 12:04am | Replies (1089)
Comment receiving replies
Profile picture for alwiedeman @alwiedeman

Hi, My name is Al, I’m from Alberta and just got diagnosed with HCM in January 2025 at 76. Hope to start my journey on Camzyos in the next week or so. I think I’ve suffered with this condition for some time but was just diagnosed with HCM recently. My symptoms don’t seem as serious as those of others I have read about in this forum. Here we go………….

Jump to this post

Replies to "Hi, My name is Al, I’m from Alberta and just got diagnosed with HCM in January..."
Debra, Volunteer Mentor | @karukgirl | Jun 5 11:03am

Hello Al from Alberta @alwiedeman, and a warm welcome to Mayo Clinic Connect!
Your story sounds like so many of the HCM/HOCM folks on here...some of us tend to go for years with either the wrong diagnosis or no diagnosis.
Have you had a chance to read the Camzyos support group discussions?
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Is your cardiologist up-to-date on all things HCM and Camzyos?
There are several members on Connect from Canada, and it sounds like they have a pretty good system for those who are taking this drug.
Are you active and able to exercise even with HCM?

VIEW AND REPLY