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Thank you for asking. My appointment went great. The doctor is the head of the department and took all the time needed to answer questions from both my wife and myself. (My wife's mother died from her treatment for leukemia so she had that in the back of her mind as we met with the doctor.)At this point I am scheduled for updated bloodwork in a couple of weeks and then again in 6 months with a follow up appointment. Doctor indicated no need for the 24 hour urine test nor the skeletal bone scan at this time. He was also not concerned that my father who is 98 has cardiac amyloidosis being hereditary. He was impressed that my PCP had taken the extra steps in ordering the bloodwork that resulted in my diagnosis. I feel good, am really happy with my care team and thankful knowing the diagnosis could have been much worse. I want to thank everybody for their comments and advice which really helped me get prepared for my appointment. It took almost a month to see the doctor my PCP wanted me to see and he was actually not taking new patients but has a good relationship with my PCP and I definitely got to see him because of that relationship. Thanks again to all and I am very grateful I found this group. Interestingly the doctor referred to Mayo a number of times.

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Replies to "Thank you for asking. My appointment went great. The doctor is the head of the department..."

@genedoms This is a great report to read from you!

Having confidence in our medical team is important, and remember, you are one of those team members! It will go a long way to have everyone in communication with each other. If you have questions, write them down. Everyone's experiences can be a bit different, so reading here will be helpful, but may not always apply to your own situation. Being your own advocate is important. And it will help make things go smoothly for you.

I am looking forward to hearing more about your journey.
Ginger