← Return to Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

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Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Blood Cancers & Disorders | Last Active: Aug 21 4:01pm | Replies (52)
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I’m not sure you need all these tests. The MDY88 is over 90 % positive for WM with Congo Red by histology. I later asked for the CXCR testing as the outcomes aren’t as good. I take IVIGG infusions for the low IGG levels to boost the immune system. You may want to ask for the Fat Pad test which further confirms WM.

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dcuste | @dcuste | Jun 1 2:24pm

Thanks for the suggestions. My IgG levels for the first two years were in the high 600 mg/dl levels, just below the normal of 700. The last year they have been low 600 to now the high 500 level. Being asymptomatic, it doesn't appear that I would qualify for IVIGG. If I start getting neuropathy or infections, I'll definitely inquirer about that option or maybe SCIG seems like a better option. In the mean time, I guess I'll try to avoid exposure to any infectious diseases out there.

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