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Profile picture for marienewland @mnewland99

I’m sorry to hear about your husband’s PET scan activity. I’m in the same position; new, small activity. I’ve just been on gemzar the last 5 months and apparently by itself, it’s not effective enough to stop cancer. Naliri should be my next move, but it can exacerbate existing conditions of interstitial lung disease (ILD) of which I do have and use an inhaler 2x per day. I might need to add abraxane to the gemzar again with its wonderful gifts of neuropathy and hair loss. I almost lost my ability to walk and drive due to abraxane so I’m not excited about it. I also plan to get MRI radiation again on my new liver lesion, but my oncologist says I need a systemic treatment (chemo), as well. If you say your husband’s chemo is wearing down, which new chemo will he try? Hoping the best for both from across the continent!

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Replies to "I’m sorry to hear about your husband’s PET scan activity. I’m in the same position; new,..."

@mnewland99 The thing is the Gem-Abraxane is controlling the spread elsewhere. These 2 spots - one on the surgical bed and one at the resected end of the pancreas - were always there but not 'lit up' in PET scans; they were just shadows. So the Gem-Abraxane appears not to be controlling these 2 spots. Onco says once these 2 spots have been dealt with, its back to Gem-Abraxane. Hard to figure out what is happening and what to think. Seeing surgeon tomorrow to see what he thinks - he was concerned about these 2 spots 3 months ago when scan and MRI were all clear but CA19-9 was rising. One hopes he can go in there and scrape them off!