← Return to LVOT peak systolic gradient up to 19/35 from 12/13 Dr. raising Camzyos

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@walkinggirl

I believe the echo may have shown increased obstruction, jmr019805, do ask your cardiologist. HOCM does not seem to be a static condition, and different treatments seem to be required at different stages. For some, a treatment at a stage seems to keep further obstruction in check and for others, surgery becomes necessary to put a halt to further distress.

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Replies to "I believe the echo may have shown increased obstruction, jmr019805, do ask your cardiologist. HOCM does..."

thank you @walkinggirl. For all of your comments here to which I always look forward. You are so right: HOCM definitely is not a static condition. It is inevitably progressive. And it seems like a relatively new challenge to treat by cardiologists. Camzyos is a bit of a miracle but its helpfulness also is not consistent. And there's another drug in the pipeline. Surgery does not halt further problems. Many have had the surgery and then the progression of the thickening of the heart walls continues until yet another surgery is required. Or they just die. All of this is a recent, sudden change in my life. I knew I had HCM for a few years and was asymptomatic and it seemed irrelevent, but HOCM seemed sudden and is new as of January (when my heart started obstructing blood flow and I had the chest pressure and shortness of breath both very serious). So many other risks like sudden cardiac death, heart failure from Camzyos etc. I think the real challenge is how we handle it all emotionally. Having loved ones and perhaps a psychologist seem essential.