Internal vibrations still affecting anyone?

I have had the internal vibration 24/7 since 2021... sometimes it's so strong in my chest and whole body and simply unbearable and other times it's in my right leg... but it's always there. Sugar and rich food makes it worse. Stay strong.

Thanks. I never thought about sugar affecting them but will pay attention to that. I had another terrible night of them last night. So frustrating.

I also have these internal vibrations..sometimes it's a tingling type and sometimes it's these shocks that go through me ..like as if I was holding onto an electric wire..nothing I can do, just have to ride it out, this has been since I got COVID Dec of 2019

i have it, started in the fingers, got slowly worse over time, spread to the legs, arms, chest, neck, head... full body tingling/buzzing sort of feeling, with some numbness in areas, and pain underneath, if that makes sense. low dose naltrexone gives me some relief

Still doing research on histamine intolerance and mast cell activation syndrome. Not only LC sufferers, but people with the above two conditions have reported internal vibrations.

so sorry that you are dealing with this too.
i also have internal tremors. and yes, stay away from sugar. i took LDN for a while, it did not help with tremors but did give me energy. i stopped taking it when i tried other things. drugs for external tremors did not work for me. there are 2 things that help me. one is an anti-histamine regimen of Allegra and Pepcid. the other is an SSRI or an SNRI. i now take Allegra after breakfast and prescription 40 mg Pepcid afternoon or p.m. it took about 4 weeks to kick in. maybe this will help you too.

I was normal and healthy before I got the first Pfizer shot. 4 days after the shot I got a headache so bad I lost vision in my left eye for a few moments, got blurred vision then woke up the next day with dizziness and vertigo. I had to hang on to my husband to walk. I felt this electricity going through my body, down my arms and legs and my brain felt a fullness sensation. Movement made it worse then I became so fatigued I would crash for hours with an internal tremor, tinnitus and a body brain tremor. I also had difficulty speaking getting words out, like aphasia. I couldn’t read without crashing or work on a computer. I had trouble articulating what I was experiencing. I was experiencing heart palpitations/tachacardia and SOB. Also unexplained rashes on my face neck and chest and rash patches on my legs and arms. The week before the vaccine I was running with my husband 5-10 km every weekend and working out at Orange Theory. I was told the vaccine wasn’t responsible and I was told to keep getting it. After the second shot 24 hours later I was in an ambulance with severe sweating and heart cramping. Was given nitro and gradually the cramping subsided. No explanation when I asked if the vaccine could have caused this event I was ignored. Every specialist I saw did not have an explanation for my sudden onslaught of symptoms and not one specialist would go near my questions about the vaccine. I felt afraid to even mention the vaccine because of the frozen almost angry response I would get. Fast forward 4 years and I finally have been dx with MECFS; MCAS; POTS, Sjogren’s and Lupus SLE. I wake up from sleeping whether from a daytime crash(usually once a day or more) and morning to full body including arms and legs tremor. My arms and hands will be numb and tingly and often my hands and fingers are splayed out stiff as boards. It’s an awful way to wake up and it’s been everyday for four years. Since the first shot. I have PEM. I get anxious about planning g any social events and have learned to warn people that I may have to cancel last minute because I don’t know how sick I’ll be the day of. I get really stressed out inviting friends over for dinner or even just a coffee because I’ll feel terrible If I have to cancel. The worst part is not knowing how long I’m going to live. I was 50 years old when I got sick. I’m 54 now. I lost my career in healthcare. Which I’m upset about because I loved my career, did an undergraduate and graduate degree at McGill and also attended NYU and planned to finish another masters degree in bioethics. Now I can’t read or remember in a normal way. I lose my train of thought and have trouble concentrating. I become exhausted, then tremor then crash, then tremor coming out of my crash. Some days I cannot get out of bed and I’m so sleepy I feel drunk. I’ve also experience leg and arm weakness. Have fallen down for no reason. This symptom started a year ago along with peripheral neuropathy in hands and legs and toes. Came off amitriptyline and the symptoms got better. Now the falling is coming back. I have neck zaps and pain. Was dx with Lupus in January and the Rhumatologist believes the vaccine likely caused this. I am 100%certain the vaccine is responsible for my sudden illness 4 days after getting it. The worst part is not even the illness itself and the adjustment I’ve had to make in my life dealing with being sick everyday but the lack of support and interest in physicians I saw after the injury. Doctors dismissing me when cbc’s and other tests come back normal. The resistance to discussing possible vaccine harm. One doctor literally told me he couldn't document anything about the vaccine or he could be fired 🙄. No one should have been afraid for their job in order to connect the obvious dots. The ER attendings should have told me NOT to get more vaccines until they could be 100% be sure they didn’t harm me. I tried to get an exemption but was denied twice. Lastly, I’m getting an MRI of my brain and neck to see what could be causing my falling and periodic leg weakness. I’m hoping it’s not MS on top of the Lupus SLE. Does anyone know if the vaccine can cause autoimmune disease? Can anyone relate to my story and symptoms? I have applied for the Canadian Vaccine Injury program but my caseworker has not followed up with me for months now so I don’t think I’m going to get it.
Anyone else going through this has my empathy!!
Tracy

Thank you for your recommendations!

It’s so difficult getting people to understand the internal vibrations. My family looks at me like I’m crazy! I go through periods of terrible itching all over my body as well…was told it was a histamine issue but other than Benadryl I was given no other recommendations. Sigh.

scrappy (love that name). Maybe you can find a doctor that knows how to treat histamine intolerance. Perhaps your present doctor knows how to treat it.