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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (989)
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@deedee1958

Hi I was recently diagnosed with ohcm , tho they say it's very minor at this time. My question tho is even if mine is minor coukd it be the reason there are times im so short of breath I can't do any work? I thought im getting terribly lazy ! Then the shortness of breath let up and the days afterward I coukd work like I always did. The bad days I walk around in the house and im so wore out I can't get the job done I went to do. Could this be the hcm?

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Replies to "Hi I was recently diagnosed with ohcm , tho they say it's very minor at this..."
Debra, Volunteer Mentor | @karukgirl | May 30 5:14pm

Hello @deedee1958, and welcome to our little group here on Mayo Clinic Connect!
You ask a great question, and I am not an expert by any stretch, but I would say that most people with HOCM have these same symptoms.
And the weird thing is that there are good days when you forget you have this condition and days you think you could sleep all day and get short of breath just tying your shoes!
So in my opinion I think what you describe goes along perfectly with HOCM.

Have you had a chance to read some of the posts here on Connect?
Have you read this from the Mayo Clinic?
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
Or this from HCM.org?
https://www.4hcm.org/
I have another question for you!
Is your cardiologist up-to-speed on treatment of HCOM?
That is super important for you going forward.
HOCM can progress like any disease, and it's up to you to be your own best advocate and educate yourself on all you can about what you were recently diagnosed with.

In my case I was misdiagnosed for several years and by the time I was correctly diagnosed at the Mayo Clinic in Rochester (which is the leading Center of Excellence for treatment of HCM and HOCM) my heart was enlarged and failing and I needed open heart surgery.
Not to scare you! But it felt like it progressed from random days of good and bad to really bad in a short time period.
I'm so glad you are here and encourage you to get familiar with your HOCM...
When is your next echo?

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