Hello all, I am a 66 yo female diagnosed with Lymphocytic colitis 10/2023. Previously diagnosed and treated for IBS-d for 10 years without relief. I became very sick 1/2023 with cramping, liquid stools 7-8 x day preventing me from leaving my home. My GE refused to do another colonoscopy convinced it was IBS-d. After months of this, incidental findings on CT of colon suspicious of inflammatory colitis my GE referred me to another GE in the group who did "difficult cases". Pathology was Microscopic Lymphocytic and started on Budesonide, 12 weeks. This quickly worked. Unfortunately, off Budesonide for 1-2 months I relapsed. I have relapsed 3 times, requiring Budesonide which agan worked. I asked for low dose Budesonide 3 mg/ day which stopped symptoms while on maintenance. My primary GE refuses to believe the pathology findings and I have lost trust in her management and those in practice
I have tried bile sequesrtants, diet therapy, stress reduction, pepto unhelpful. I am reluctant to try biologics due to poor efficacy and serious adverse effects and co existing medical conditions. I am asking for input, advice from the group or moderator. I am very depressed, fatiqued, isolated and family is non supportive so I thank you in advance.