Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 5, 2019

In reply to @dave06351 "That link doesn't work for me. Maybe because I'm using a smartphone for access." + (show)

Let's try this!

Shared files

UPDATED MALS SURGEON LIST 3 (UPDATED-MALS-SURGEON-LIST-3.25.18.pdf)

jayhawk57 | @jayhawk57 | Apr 6, 2019

In reply to @kariulrich "@tutogrl Yes!! I cannot wear belts, I eat laying down sometimes... I often when sitting have..." + (show)

I have the same issue. I now have a hernia from my MALS surgery in 2013. I'm having issues as I did before surgery. No one wants to touch me. Do you think coming to Mayo since I have FMD as well will help? Thanks!

chicken | @chicken | Apr 7, 2019

Does anyone find that they crave salt and absolutely NEED it? I'm wondering if this is a symptom MALS patients have, or if it's just me:)

kellylinn | @kellylinn | Apr 7, 2019

In reply to @kariulrich "Thank you, Yes @lisa01 I am part of MALS PALS, but I do like the security..." + (show)

I'm interested
I underwent a SMA bypass surgery 10 hours and now am facing the next battle with my Celiac diagnosed with both disorders.

ukmalsman | @ukmalsman | Apr 7, 2019

In reply to @kariulrich "Let's try this!" + (show)

Hi @kariulrich

It’s been a long time since I have been on here due to poor health. December was the last time I was able to log in so I have a lot to catch up on. I was wondering if you have heard anything from @racheldmark, how is her uncle @ruudolpho has he made any improvements since December?

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 8, 2019

In reply to @ukmalsman "Hi @kariulrich It’s been a long time since I have been on here due to poor..." + (show)

@ukmalsman thank you for posting, I have not. I hope they see your tags and feel up to giving us an update! What is going on with you?? I am so sorry to hear your health has been struggling!!

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 8, 2019

In reply to @chicken "Does anyone find that they crave salt and absolutely NEED it? I'm wondering if this is..." + (show)

I have POTS, so I find myself craving salt often!

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 8, 2019

Just to keep everyone up to date: Mayo Clinic Rochester just sent me consent for MALS research in the mail. I believe it is for patients that have had surgery at Mayo. It had many quality of life questions about pre and post surgery, in addition to symptoms. I hope this gives you all hope like it did for me. The more research the better. I will keep you updated if I hear anything. Also, I will be going to a conference in Dallas, Texas this week called Healthevoices to learn how to better advocate for all of us. I may not be on as much during that time Wed-Sun this week. Please know I will be thinking of you- Healing Hugs, Kari

tutorgrl | @tutorgrl | Apr 8, 2019

Thanks for the replies on sitting positions affecting the pain with MALS. When my symptoms started 15 months ago, I had severe pain below my left ribs near the bra line. It’s very painful to put pressure on that area. This pain has continued. Has anyone else experience pain in the same area?

jayhawk57 | @jayhawk57 | Apr 8, 2019

In reply to @kariulrich "Just to keep everyone up to date: Mayo Clinic Rochester just sent me consent for MALS..." + (show)

Thank you Kari! I'm having issues and coming to Mayo finally. I visited with you a few years back when I was I. Kansas City.. You were very supportive and appreciate all you do to be a voice for us. I since had Mals surgery 2013 and having issues again. I also have FMD in C4 -C5. And lost left Kidney as well.I have a hernia where they did surgery but can't get anyone to help me. Have a great trip!
Linda Allen 🙂