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Small Fiber Neuropathy

Posted by Marlene Eckert @me1229, Oct 31, 2019

I am currently on 1200 mg of Gabapentin twice daily. My pain is not totally controlled at this level. My pain level gets worse as the day goes on and is worse at night. I like my one glass of red wine at night. I wonder if that is an issue with my pain. I’ve tried adding Cymbalta that created severe dry mouth then stopped that and tried Lyrica and that was just as bad. Now my doctor wants to try increasing the Gabapentin to 3600 mg a day. Here is another point. Can anyone tell me about their experiences

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Mariette R. | @marietter | May 29 4:32pm
In reply to @vaun "I do not take tramadol. I have tried it, but it did nothing for me. I..." + (show)
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I do not take tramadol. I have tried it, but it did nothing for me. I use acetaminophen 650mg, as needed, and Gabapentin 200mg at night

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I now also take arthritis strength acetaminophen with an additional 200 mg Ibuprofen when I’m really hurting. Pain physician said that was excellent to do. Acetaminophen for pain and ibuprofen for inflammation .

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jchet | @jchet | May 31 11:13am
In reply to @bettyg81pain "Are you not taking Tramadol? I couldn’t survive without it!" + (show)
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Are you not taking Tramadol? I couldn’t survive without it!

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Yes, how much do you take how have your symptoms lessened?

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stacy4man | @stacy4man | Jun 14 2:43pm
In reply to @budjo611 "I’ve tried them all. Lyrica, gabapentin 3600 mg a day. Cymbalta combined with both. Gabapentin and..." + (show)
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I’ve tried them all. Lyrica, gabapentin 3600 mg a day. Cymbalta combined with both. Gabapentin and Lyrica together. Nothing, I mean NOTHING works well. I was diagnosed with SFN 3 years ago. It’s obvious, at least in my case, nothing works well.
Sorry to be so negative, but it seems the medical field is oblivious to methods of treatment. There are clinical trials ongoing, and I’m volunteering my body to one. But it doesn’t start till January. Best I can say is don’t give up. You’re not alone. It’s not in your mind. It’s all too real, and it’s truly life altering!!!!!
Hope is the only thing that keeps me going..
HANG ON TO HOPE!!!!!
BOTH HANDS!!!!!

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How did your clinical trial go?

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melodyw425 | @melodyw425 | Sep 10 2:05pm
In reply to @johnbishop "Hi @me1229 -- There is already a discussion with the same name. I'm tagging our moderator..." + (show)
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Hi @me1229 -- There is already a discussion with the same name. I'm tagging our moderator @lisalucier to see if we should combine your post with the following discussion where other members with small fiber neuropathy can share their experiences with you.

> Groups > Neuropathy > Small Fiber Neuropathy?
-- https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-3/

It's just my opinion but I no longer drink alcohol because I know it damages nerves from the research I've done and can also cause neuropathy if you drink too much. It may not hurt to have a glass or wine at night but I look at from the perspective of it may not hurt but it certainly won't help the nerve damage that causes the pain. Hoping other members will chime in and share their experience with you.

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I just learned that I have small fiber neuropathy. They have not been able to find what has triggered it, but my sister has Charcot Marie tooth disease so I am sure it is hereditary. I am waiting on a consult with Dr. Klein @Mayo Clinic.
I tell you all this because I have a large family history of cirrhosis of the liver and people dying within 10 years of drinking. How I kinda understand it is you’re already dealing with a small fiber neuropathy, and then to drink on top of it. It is just going to speed up the alcohol symptoms meaning cirrhosis of the liver and damage you more. Alcohol is NOT the answer. I have seen it firsthand, and I always grew up thinking that there was something more to it as just alcoholism. my mother died when I was 16 of alcoholism. She was 40 years old. I am now 44. I’m not an alcoholic. Her brother died in has late 20s my grandmother died in her early 50s and she did not get cirrhosis of the liver until she got sick and started drinking. I can go on and on about other family members that have died in the early 20s too and other family members that are fighting to survive and not knowing what’s going on with them.

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