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DiscussionL-dopa pump for treating Parkinson's Disease
Parkinson's Disease | Last Active: Jun 5 9:53am | Replies (7)Comment receiving replies
Replies to "Update: the U.S. Food and Drug Administration (FDA) approved this infusion-based treatment for Parkinson's use, foscarbidopa/foslevodopa..."
I have now had my little buddy for 20 months. I had had ZERO spontaneoud OFF periods. I have had aabout 4 or 5 self- inflicted OFF periods: Forgot to turn it back on after a bath; forgot to turn it back on after I changed the battery; tried to change the rate while I was half adleep, in the dark without my glasses and onitted s singke strp on thst procedure, which turned it off instead. Sometimes I forget I've got PD, and do something stupid, like forget to tak an LT before I go out to dinner. BUT with my pump I have the option to: (1,) Turn itup on Hi until I
get caught up (2) take a little booster from my pump. So i have all these different ways to recover when I'm out and about. If they ever try to take it away from me, thet'll havr to pry iit from my cold dead hands. Alas, I'm still 80 years old so i have limitation or two.;-) The ABBvie people are fantastic. I mret with them from time to time when tge cone to fo follow up and they are eager to knoe if there is dome additional feeature i would want. I have dealt with the helo desk alot. Not because i'm having a oroblem, but just when ihave a question about hiw something works. The akways respond within 24 hours. Look uo their eebsite and go t the place where they talk about whatvtheitnppurposevis. It made me wish I could work . there! These folks know what they're doing. Some times it's a tad frustrating just having to accommodate the pump's cycle - like if we go out to dinner with other folks, wr have to be home at 6 or so to make sure we can feed my pump ( so We may have tpo go out later than we'd lije, or if we go out fir a late lunch , we might have to come hone sooner than we'd like. But it is still easier than dealing with pills, which I was tsking 8 times a day, and you have to fast for 2 hours before and one hour after. Still worth all the trouble! 😉