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Neuroendocrine Tumors (NETs) | Last Active: Jul 15, 2025 | Replies (19)

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No. The doctor said ct/mri confirmed. No biopsy because he doesn’t want it to Mets. It just doesn’t make sense.

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Replies to "No. The doctor said ct/mri confirmed. No biopsy because he doesn’t want it to Mets. It..."

Please seek out a net specialist before going forward. You very well may need surgery but more information is needed to determine the best course of action

I agree that it just doesn't make sense. And if it doesn't make sense, why do it until it does? Diagnosing and treating NETs is a bit like building a puzzle. If you force the first few pieces together, the remaining pieces just won't fit right. To me, your doctor is forcing the first few pieces together that won't allow your puzzle to work. You deserve your puzzle to work. Get another opinion. Allow the folks on Mayo Connect to share our experiences and resources to help you put your best puzzle together. It's your life. You are your best advocate. Fight for what makes sense to you. Please let us help fight with you. It is a journey that is just too hard to fight alone. Most of us on here know. We are all on our journeys ourselves, but we are doing them together. Does that make sense? If not, please let us know.

I agree with what the Dr says about metastasis; once they do surgery it’s almost an “automatic” it will spread (no disrespect to surgeons, can you imagine trying to remove all the microscopic cancer cells?) Good luck to you!