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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)Comment receiving replies
@techchick1025 I have had the completely opposite experience with Mayo Clinic, they are the leaders in the number of MALS patient they treat. I have had nothing but a positive experience with my team of physicians. Unfortunately because this is a rare disease even experts don't have all the information they need... there truly is no experts with MALS, however there are physicians who have a lot of experience. We need more research without a doubt. I know emotions can get high with this disease, frustration and pain can be overwhelming. I am happy you found the help you needed.
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I made 4 long trips to Mayo and got absolutely no where with any single problem I have and there are many. They focused only in fibromyalgia which I’ve had for 25 years. Suggested 3 week pain management class costing thousands and completely ignored the incidental finding of avascular necrosis or my immune system and connective disease issues. I found all new fairly local DRs that are on the ball now. I look forward to getting the proper treatment and attention from DRs that actually listen and see the big picture.