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It is a smart choice to see a specialist that has focus on Myelofibrosis. I live in MN and my local oncology clinic is part of the Mayo Clinic in my city. I asked for a referral to the Rochester Mayo Clinic and saw Dr. Tefferi. He claims to be the world leader in this disorder. He is well published. I met with him in person the first time and did a follow up teleconference 6months later. The great part is he can see all of my test results and clinic visits from my local oncology clinic because they are part of Mayo. He has my local oncology doctor order meds or additional testing as he sees needed.
Since you are at a May o Clinic also you can ask about a video consult or a sharing between doctors with Dr Tefferi.
I wish you peace of mind.
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Thanks for the information and as an added advantage for the Mayo Patient Portal, there is a way to import all your data from one patient portal to the other so that all doctors have access for updates. This importation option is a typical feature for many patient portals and it eliminates the requirement that the patient carry around a file cabinet from one appointment to the next. Maybe all of this information is TMI for some doctors 🙂 !
Take care