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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@kanaazpereira

I'm sorry to learn that you were in so much pain, @ukmalsman; may I ask if there's anything you could share about how you coped and managed the pain? I'm glad to see you back on Connect.

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Replies to "I'm sorry to learn that you were in so much pain, @ukmalsman; may I ask if..."

Hi @kanaazpereira

I'm glad to be back, it helps to help others in the same situation. I think all MALs sufferers have a strong spirit of mind. If you think about it, the severity of the pain is like being tortured every single day. I say to my friends it's like being in the Sigourney Weaver movie Aliens, as it feels like one of those monsters is trying to pop out of my chest! No matter how bad it gets I know that at some point there will be a lull where the pain will eases enough for me to do things. It's a battle of wills, pain v mental well-being; if you let the pain win your mental health takes a beating so I find things that amuse me, make me smile or LOL. My friends know when I'm out of action because they don't hear from me, they kindly allow me to rest but send me jokes, funny pictures and videos to amuse me. When I am curled up in the foetal position because of the pain a funny picture from a friend can take your mind off the dire situation.

Also being prepared is a given. I have everything I need by my bed, water, books and I basically live on jelly babies and licorice allsorts. I always think to myself this body belongs to me and not to the pain; the pain may take away my freedom, but it will never have my liberty!

Mark