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Next course of action for undiagnosed polyneuropathy

Neuropathy | Last Active: May 28, 2025 | Replies (22)

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Profile picture for abbyrose @abbyrose

I have recently been diagnosed with large fiber sensorimotor Pollyneuropathy. I received very little information from the neurologist other than it could get worse. It could get better or it could stay the same. I’ve been left to just search on my own for more information. I’m glad I found this group. I’ve been using red light therapy on my feet and lower legs, and it has helped with my feet from feeling like they’re freezing all of the time. I stopped using it for a few days and my feet felt like ice cubes again. After two days of using it again they feel warm. I hope that will help the other sensations and strength too.
I haven’t heard much about autonomic nervous system with polyneuropathy. I have periods of dizziness, I can take a short walk with the dogs and come back, feeling dizzy and exhausted. Even though my strength overall is still good. I have started having hot flashes which I’ve been gone for 20 years. I would like to know more about the autonomic nervous system system affect and if there’s anything I can do about it. Also, I was wondering if Covid could be a cause.

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Replies to "I have recently been diagnosed with large fiber sensorimotor Pollyneuropathy. I received very little information from..."

Welcome @abbyrose, We are glad you found Connect also! Learning as much as you can about your condition and what treatments are available that provide relief is the best that any of us can do to help ourselves. The Foundation for Peripheral Neuropathy has quite a few articles on polyneuropathy if you want to scan through them - https://www.foundationforpn.org/. They also have a YouTube channel where the keep all of their previous webinars which are a gold mine of information and sometimes easier to digest than reading research - https://www.youtube.com/@foundationforperipheralneu4122.

My non medical opinion is that Covid could possibly be a cause or at a minimum have an impact on folks with neuropathy. Here's an FPN webinar on the topic - https://www.youtube.com/watch