What side effects have you experienced from SBRT for prostate cancer?

Posted by tommyo @tommyo, May 9 5:17am

Just diagnosed with prostate cancer Gleason score 7. Options are prostate surgery versus SPRT leaning towards SBRT anyone had experience with this?

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@toolbelt

ADT was an easy ride for 6 months. Exercise, eat well, enjoy life.

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You were extremely lucky then, and obviously it won’t be an issue for you, but not everyone has it so easy. Just as my husband recovered fantastically after his prostatectomy, but he is fully aware a lot of men end up with ED and incontinence post op.

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@toolbelt

I finished radiation for mine December 28, 2023. I was 68 years old at diagnosis. One core 4+3, one core 3+3. PSA was 7.8, Decipher was high at 0.84. confined to prostate, my PSMA PET was clear.

My RO was able to visualize my urethra on a CT, MRI and the PSMA PET. Using that information he used "urethral steering" to ensure the urethra did not receive any radiation "hot spots". I had 3 fiducials placed and a Barrigel rectal spacer. I was treated with 5 fractions of SBRT over 2 weeks using a Varian Edge LINAC. My prostate received a total of 36.25 Gy with the primary lesion receiving a focal boost to 40Gy. I also took Orgovyx for ADT for 6 months, The entire ride was remarkably easy, and if I had amnesia from the actual two weeks of treatment I would be hard pressed to know anything was done. Six weeks after the SBRT we went on a two week SCUBA trip.

So, 16 months post radiation and all is well.

Also, check my posts here:
https://healthunlocked.com/prostate-cancer-community/posts/150350149/sbrt-4
https://healthunlocked.com/prostate-cancer-community/posts/150384210/day-8-post-sbrt
https://healthunlocked.com/prostate-cancer-community/posts/150412299/post-sbrt-day-9-15
Stay Strong Brother, We Got This.

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Nice to hear. I have a similar situation. I await the results of my Decipher test. If high, my therapy will very likely be similar and I feel better about it after reading your post.

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@thelawdave

Nice to hear. I have a similar situation. I await the results of my Decipher test. If high, my therapy will very likely be similar and I feel better about it after reading your post.

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@thelawdave When I needed it most, I also read @toolbelt 's encouraging experience. Helped me in deciding to proceed with our Disney cruise.
(My wife booked it in July 2024. My SBRT took place April 9-21, following my February 2025 PCa diagnosis Gleason 7 (3+4) positive on 8 of 14 cores.)
I had mucus and blood on my stool, frequent bowel movement on week 3 post-radiation (I suspect because I had no spacer between the prostate & rectum); it cleared on its own (no meds) at the end of week 3 and I had no issues during the cruise on wk 4. I'm now on wk 6.
I wish you & hope you'll have a problem-free procedure.
Best,

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@vircet

@thelawdave When I needed it most, I also read @toolbelt 's encouraging experience. Helped me in deciding to proceed with our Disney cruise.
(My wife booked it in July 2024. My SBRT took place April 9-21, following my February 2025 PCa diagnosis Gleason 7 (3+4) positive on 8 of 14 cores.)
I had mucus and blood on my stool, frequent bowel movement on week 3 post-radiation (I suspect because I had no spacer between the prostate & rectum); it cleared on its own (no meds) at the end of week 3 and I had no issues during the cruise on wk 4. I'm now on wk 6.
I wish you & hope you'll have a problem-free procedure.
Best,

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Thank you to everyone who responded with their experiences. I begin SBRT @MSKCC 2nd week of June having spacer placed tomorrow.

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@tommyo

Thank you to everyone who responded with their experiences. I begin SBRT @MSKCC 2nd week of June having spacer placed tomorrow.

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We got this brother.

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@wn25

Definitely trying to stay positive, keep working and doing my normal stuff... Thank you for your input!
That is definitely good to know!
Seems a lot of people have no real bad downs from the injections... Other than always hot and mood swings...
"Man-ipause"... 😂
The radiation? Kinda the same from what I'm reading. Just don't "want" to deal with it all... Spoiled child syndrome I guess. Lol

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I'm Scheduling SBRT for July in Colorado, could I ask what cancer center you are going to. Thanks!

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