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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@kariulrich

I thought it would be fun to share a photo with you all. So to help with my over all well-being I have taken up western pleasure riding lessons once a week. Let preface this with the activity is strenuous and does trigger mals pain- for me exercise brings on pain. I do believe it has to do with my underlying vascular disease along with scar tissue from surgery, however with that comes a great escape from all pain. That one hour on the horse, connecting and learning has been invaluable. Staying active is so difficult when you are malnourished and feeling unwell. I do have times when I have to cancel lessons due to symptoms. And when I miss a week I find that the rest of my week is difficult. Just wondering what activities you all are able to tolerate, what brings you joy and escape from the chronic symptoms?

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Replies to "I thought it would be fun to share a photo with you all. So to help..."

Hi Kari, it is great to see you with your horse!!! I haven't been on in awhile. I have been focusing on the dysautonomia and all of that. It is frustrating. However, I am beginning to have my MALS pain again. I did have narrowing again in Aug of the Celiac, but sma was good so we decided to wait and see how it goes since I have all this other stuff going on. I go the end of the month for another scan. I may move it up.UGH!!! Well keep riding, it seems to do good for you because you look great!! Jill

Hi @kariulrich

A woman after my own heart! I enjoyed horse riding especially as a means of getting around when I traveled to other countries. I would have taken it up if I had not become so ill with MALs, Instead I find my escape in writing novels, to which I can do anything my heart desires!