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@sweetsuzy

I am newly diagnosed with CLL anyone else new to it also?

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Replies to "I am newly diagnosed with CLL anyone else new to it also?"

Welcome to Connect, @sweetsuzy. Whether you’re just at the beginning of your diagnosis as a newbie or a veteran of CLL, this is a great place to join the discussion. If you’re looking for newly diagnosed members, @ksandusky86 and @mygirl recently joined the group.
Here is a message I wrote to @ksandusky86 which might be a good introduction for you. https://connect.mayoclinic.org/comment/1294093/

What have you and your doctor discussed about your CLL? Are you in active surveillance or will you be requiring treatment?

I was diagnosed about a month ago. I was reviewing the blood tests from a hospitalization for pancreatitis and the smear test caught my eye in all the daily numerous blood tests done when I was in the hospital. Nobody mentioned it! So I had a follow up Dr appointment and asked (I looked it up beforehand so I knew what it was) but I was told that it was possible for that to be an issue because of the recent pancreatitis so we waited a month did the test again and sure enough it’s CLL. My doctor said to me, you will die with this not because of this. I’ve had two appointments with a hematologist oncologist, not on any treatment yet my next appointment is in August. My white blood cell counts elevated between the two weeks the last time I had blood tests. I’m a little lost in all of this still processing and trying to understand what are the next steps.