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Has anyone had experience with Jakafi?

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (82)

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Profile picture for trarenrut @trarenrut

No, not at all. First when it was determined that I had the high white count my basically overall volume of blood was high also red and white. It is about 45 now and before it was 50-51. 10 years ago I had a white count of 18. With phlebotomy and Jakafi It came down to 14 then went 2 years with no phlebotomy. I don't know why but it jumps around. Last week it was at 22. I have never had it that high. I just thought maybe phlebotomy would help. (not that I look forward to it). I appreciate any ideas but ultimately it is in the hands of my oncologist. Thanks

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Replies to "No, not at all. First when it was determined that I had the high white count..."

Hi @trarenrut, ultimately your health isn’t in the hands of your hematologist/oncologist. It’s in your hands. You sound concerned about your continually high white blood count and I’m wondering if you have actually been able to talk to your oncologist about your concerns.

WBCs can fluctuate daily as an immune response. Multiple factors can raise WBC for example: Infections, underlying inflammation, stress, smoking, allergies, bacterial or viral infections and certain drugs, etc..
Treatment for high white blood cell counts usually involves addressing the underlying cause rather than phlebotomy. That’s generally used to reduce excess iron or lower blood volume.
What is your actual diagnosis that has you on Jakafi the past few years?