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Newly diagnosed MDS-IB2 and vidaza

Blood Cancers & Disorders | Last Active: Jun 28, 2025 | Replies (23)

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She said she would take the pediatric dose of Benadryl. Not sure she actually has but not complaining anymore so who knows....amirite???

She and I and her doctor did discuss whether she would take blood transfusions when it comes to that point and today I think she would....tomorrow ....meh....I'd hate to bet on it either way. Initially she was saying no to receiving blood products and I brought up the topic to her and then again with her and her doctor. I do believe she does understand that by the time it's recommended, she would be feeling run down and that this could help her continue to feel better. Keeping my fingers crossed!!

Thanks for your input..... one day at a time....

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Replies to "She said she would take the pediatric dose of Benadryl. Not sure she actually has but..."

At this point, I get it…I get it! Let your mom call the plays as the game changes. You’re handling everything perfectly from my perspective. When my mom was 88 we went through similar…different disease but she declined treatment. I was 48 at the time and had known her to be a ‘take charge’, resilient woman who made wise choices for herself and her family. Who was I to deny her that right as she aged?
Of course, that shouldn’t stop us older ‘kids’ from maybe nudging in a different direction or being a sounding board. But at 88, your mom is comfortable with her decision and her terms. Have to respect that! ☺️