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@karukgirl

@apdaye,
I am so glad that you get a feeling of "vindication" from other members here on Connect. I know for myself, it was wonderful to learn other people out there knew what HOCM was like. It feels good to not be alone.
How frustrating it must be for you to not feel you have the ear of the doctors you see...you know your body better than anyone and you should not settle.
It's great that at 66 you can still walk as much as do and mow your lawn...that can be exercise for sure, especially during spring when grass goes into overtime and you can practically watch it grow in front of your eyes!
I am not sure how many cardiologists you have seen for your HCM, but I would not let that stop you from seeking an opinion from another cardiologist.
Accepting your limitations is something we all start doing as we age. I wish I could do a cartwheel, and in my mind I can. But reality says do not attempt this, you fool!
You already feel like your doctors do not have an understanding of HCM, have you gone to a COE (Center of Excellence) like the Mayo Clinic or Cleveland Clinic? These both are top COEs for HCM/HOCM.
This is your life, and 66 is young in my opinion...

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Replies to "@apdaye, I am so glad that you get a feeling of "vindication" from other members here..."

I have contacted Mayo ( step one) . Closest to me is Jacksonville. I have another name of Electrophysiologist in Mobile,Al. I am not saying ablation is the only answer, but multiple anti arrhythmia meds seem to increase symptoms of fluid overload or CHF. Thank you for listening!