← Return to Living life after treatment and surgery for Esophageal Cancer.

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Profile picture for dkoehne @dkoehne

Two years post-Ivor Lewis and my weight has leveled out at about 155lbs (from 230 at surgery) and able to eat decent portions of almost everything. Biggest challenge has been extreme blood sugar issues post-surgery that were never an issue prior. My blood glucose spikes after meals then drops dangerously low originally to a point where I would break out in drenching sweats and become disoriented/hallucinate. Self-medicated for a while with candy and fruit juice when I suspected a drop. Finally prescribed a continuous glucose monitor (Libre 3) in my arm which lets me stay in front of daily episodes with glucose tablets and liquid glucose shots. Have been treated by a reputable endocrinologist who did her best but finally said she was out of ideas. Have not seen this issue discussed in any of the posts. On the plus side having a two year CT Scan Thursday and fingers crossed for an all clear.

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Replies to "Two years post-Ivor Lewis and my weight has leveled out at about 155lbs (from 230 at..."

@dkoehne
Have you tried acarbose? This may help with the late dumping hypoglycemic episodes. My husband has similar issues. We just tried Octreotide but that made him sick (similar to early dumping). We are now going to try acarbose. There are also some studies showing SGLT2 inhibitors like Jardiance and Invokana may help with late dumping episodes as well.