Sudden peripheral neuropathy

@tkdesign
Did you get one injection in one SI joint or both?

What type of doctor did your injections and did they use X-ray to guide them? Have you had these injections in the past without these symptoms?

What type of pain and symptoms did you have before the injections. Was the pain localized to the joint only or did you have radiating pain/numbness/tingling?

Have you seen a neurologist for evaluation and testing?

@tkdesign
The injection needle may have injured nerves near the SI joint. A neurologist can do a EMG/nerve conduction study to narrow down nerves impacted.

Did you recently or ever fallen to cause the SI joint pain? Have you had a MRI of your pelvis/hips?

Since arms/hands are involved, you may need a cervical MRI done to see if there is anything compressing nerves in your neck or your spinal cord. Your lumbar spine can cause issues in your legs/feet but so could your cervical spine.

One side. Pain clinic did it, yes used X-ray. Yes had this same one before without issues.
I had radiating pain to thigh, hip, buttocks.

Yeah it's possible, though since my tingling/numbness is on both sides and my injection only on one, I felt that would be super odd. I am going to have EMG studies done and saw a neurologist. She's a bit mystified also. I did not fall. The SI pain came on suddenly one day and no idea what i did. I had had spinal surgery 3 mo previous though in my sacrum area. I think the SI weakness is connected to recovery from that. I do know I have some degenerative disc in the neck and lower lumbar. Had many MRI's a year ago. But it wasn't anything awful or needing surgery. I also had a pelvic and lumbar MRI real recently this year and they couldn't confirm anything to cause the SI joint area pain. The recent neuropathy came on after any MRI's i had done...I'd really hate to go and redo them all over. As of now my neurologist hasn't ordered any new ones.

@tkdesign
Did you ever get a lumbar spine MRI? I have lumbar spinal stenosis, degenerative disc disease and neurogenic claudication. This caused me pain/weakness/numbness in lower back, hips, buttocks, thighs and feet.

@tkdesign
Usually, MRIs are good for 6-12 months. Some doctors are okay with older imaging and some want updated imaging if older than 6 months. I had a cervical MRI last February and had new symptoms which showed a new herniated disc in my November MRI so things can change pretty quickly.

An orthopedic spine specialist can look at your cervical and lumbar spine MRIs you have had. There is a SSEP test that can give more information on nerves. It sounds like something may have shifted from your surgery or the 2nd injection in your SI joint may have injured your spinal cord bundle/cauda equina.

Yeah it's crazy i literally just had a pelvic MRI then had the injection, so now they don't want to do another MRI because they won't admit there is any possibility of injury from this. It's amazing how I can think that's possible and you can and who knows else, but not one dr i talk to will even acknowledge it's possible. If my nerve testing shows damage they likely still won't admit it.
I don't even have a local orthopedist. Only a pain medicine clinic. My surgeon is out of state far away. It's a nightmare....I'm so frustrated. What is a SSEP test?

@tkdesign
See below links for more on SSEP.
1. https://my.clevelandclinic.org/health/diagnostics/12393-evoked-potential-test
2. https://www.spine-health.com/treatment/diagnostic-tests/somatosensory-evoked-potentials-ssep
3. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/sensory-evoked-potentials-studies
4. https://www.ncbi.nlm.nih.gov/books/NBK544358/
5. https://www.medicalnewstoday.com/articles/somatosensory-evoked-potential-sep-test

Hello diydesign,
I've read your post and all replies from you and others. SSEP test is (Somatosensory Evoked Potential) is a procedure that measures the brain's response to electrical stimulation of sensory nerves, typically in the hands or feet. It helps evaluate the integrity of the sensory pathways from the body to the brain. The test involves placing electrodes on the skin to record the electrical signals generated by the brain in response to the stimulation.
I have peripheral neuropathy which is caused by nerve damage from another reason. Sometimes the Simplist answer could be the most obvious cause. My pain management specialist is also a spinal specialist. Also, he assiciates with the spine center and spinal surgeons. Have you had your EMG test performed yet? This is how they finally ceased to point me to diabetes when I don't, never have had, not one blood test in 64 years, not one A1c. Twice I was sent for ultrasounds, both venous and arterial, "GOOD NEWS" your circulation is normal!!! Then nothing and the problem just kept getting worse. It was keeping me up at night and times I couldn't feel from my elbow to my right hand, or I couldn't feel my slipping my foot into my own shoe or I thought my sock was bunched up on the bottom. I even changed my socks. I said all of this to say, I am SO SORRY you're going through this. I understand why you feel so frustrated. Don't give up. It wasn't until my EMG that I was told what actually was causing it and it was due to nerve damage due to a condition caused by Ankylosing Spondylitis I've had, affecting my spine. Keep yourself and your health goals a priority because if you don't speak up about it no one else will keep speaking up about it either. Bless your heart!! Lola

"It wasn't until my EMG that I was told what actually was causing it and it was due to nerve damage due to a condition caused by Ankylosing Spondylitis I've had, affecting my spine."
-----------------------
I went through the same process but nobody said my diffuse peripheral neuralgia was autoimmune related. I have never been diagnosed with diabetes in spite of all the prednisone I took over the years. All I was ever told was that Prednisone "can cause peripheral neuralgia" but the neurologist said mine was idiopathic.

Now I try to tell my doctor that I think my peripheral neuralgia has improved since being on a biologic and I got off Prednisone. I suppose that being off Prednisone has helped but maybe my autoimmune disorder is controlled better and that might explain the improvement too,

If the neurologist doesn't know what caused my peripheral neuralgia in the first place then they probably won't know why it seems to be improving. I don't even know for sure if it is improving. I somewhat want to do another EMG/NCS test to see if it is getting better ... except the fact that the EMG/NCS tests already done weren't very pleasant.