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Is this ALS?

Posted by ko84 @ko84, Jul 20, 2024

Hi everyone. Please feel free to be honest with me because I am driving myself crazy trying to figure out what is going on with my body. A few months ago I started having what feel like internal vibrations in my legs and then a month ago I started having twitching and spasms in my feet especially the arches and my thighs and upper back. I also have been having fatigued forearms and cramps in my hands and feet. I can’t sleep at night because my hands and feet cramp so bad and my body twitches in random places. I had an emg done last year that did show denerveration but I havent had a new one. I have an appointment with neurology next week but any insight would be greatly appreciated because I’m stressing myself out. Thank you.

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stevegrinstead | @stevegrinstead | May 26, 2025

Please see Dr. Kumar Mayo Minnesota

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cctee | @cctee | May 26, 2025
In reply to @rainerhans "Thank you everyone for your support, the ALS is diagnosed at the Mayo Clinic and our..." + (show)
Profile picture for rainerhans @rainerhans

Thank you everyone for your support, the ALS is diagnosed at the Mayo Clinic and our cousin is showing more and more symptoms.
She has a feeding tube since months, she started to write everything up instead of speaking, she can hardly walk…
But she is a strong believer, always in a good mood and very creative when it comes to changing habits to make it easier for her and others.

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So sorry for her diagnosis. Please tell her that someone she does not know is praying for her, and also all who love her. She sounds like a terrific person. May God bless you all. ❤️

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rainerhans | @rainerhans | May 26, 2025
In reply to @cctee "So sorry for her diagnosis. Please tell her that someone she does not know is praying..." + (show)
Profile picture for cctee @cctee

So sorry for her diagnosis. Please tell her that someone she does not know is praying for her, and also all who love her. She sounds like a terrific person. May God bless you all. ❤️

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Sadly she died a few weeks ago, patient and believing in the Lord until her last breath.
We all loved her so much, never forget her beautiful smile.

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cctee | @cctee | May 26, 2025
In reply to @rainerhans "Sadly she died a few weeks ago, patient and believing in the Lord until her last..." + (show)
Profile picture for rainerhans @rainerhans

Sadly she died a few weeks ago, patient and believing in the Lord until her last breath.
We all loved her so much, never forget her beautiful smile.

Jump to this post

I am so very sorry. I hope my post did not further your pain, but instead make you smile in knowing her struggle was recognized by a complete stranger and love sent her way. And, also love and prayers for all of her precious family. I remember the first time I understood what ALS was and how cruel a disease it is. Such a comfort to know that there is no suffering in the arms of our Lord. ❤️

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