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PRRT side effects and results

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (57)
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@hopeful33250

It is so good to hear from you, @sophiarose. I'm glad to hear of the success you have had from the PRRT treatments. I'm sure you will be glad to get the results from the scan in July. Like you, I hope you get a good report regarding shrinkage.

You mentioned that you have had some side effects from the Octreotide. Could you share about that and if the side effects have lessened over time?

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Replies to "It is so good to hear from you, @sophiarose. I'm glad to hear of the success..."
sophiarose | @sophiarose | May 26 3:32pm

Thank you
My worst side effects are total exhaustion massive headache and diarrhea
The more minimal are a cough the flashing spike in BP(not as bad as in the beginning) freezing face feeling swollen
All usually go away within 5-7 days
The one side effect that is getting worst is my short term memory
I did see a neurologist he ran a bunch of tests
I will be getting a mri of the brain every 6 months
He didn’t see anything alarming he believed it is from the Ocreotide

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