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PRRT side effects and results

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (57)
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@sophiarose

My treatments were different I had 4 and they were 8 weeks apart
Except for after my 2nd I had a lot of ongoing dizzy spells
So they did a lot of tests and I continued again for the last 2 treatments
The fatigue was the worst
My last scans came back good no new growth and some shrinkage I get rescanned in July
Hopefully it continues
I am on Ocreotide every 28 days and do have some side effects from that but I am moving ahead
Please keep me posted
Good luck

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Replies to "My treatments were different I had 4 and they were 8 weeks apart Except for after..."
Teresa, Volunteer Mentor | @hopeful33250 | May 25 7:31pm

It is so good to hear from you, @sophiarose. I'm glad to hear of the success you have had from the PRRT treatments. I'm sure you will be glad to get the results from the scan in July. Like you, I hope you get a good report regarding shrinkage.

You mentioned that you have had some side effects from the Octreotide. Could you share about that and if the side effects have lessened over time?

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