Sibo treatment Rifaxamin and Neomycin

Posted by azj @azj, Oct 1, 2022

I have been diagnosed with SIBO and am being advised to take Rifaxamin 3x a day and Neomycin 2x a day for 14 days. I have many concerns about the Neomycin due to the ototoxicity. I have a bit of tinnitus already the think that may make me more vulnerable to a possible problem. The idea of taking something that might hurt my hearing even more is concerning. Any thoughts about the Neomycin in this context? I would like to hear about the research and if genetics can be determined to see if this would be safe for me to take.
Also, does anyone have any recommendations for a Dr. at Mayo/ Scottsdale who treats SIBO? I would like to coordinate care with my other doctors at Mayo as I think this is going to be essential to getting a handle on this.
Much gratitude in advance for this supportive community.
Take care,
Jaki

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bob12398 | @bob12398 | Jul 11, 2024

In reply to @parrotlady "Ask your Doctor for samples. Mine gave me two weeks of samples. It’s ridiculous how much..." + (show)

get them thru a canadian drug store online and they are very reasonable.

rjgess | @rjgess | May 25 6:07pm

In reply to @azj "Sadly, my insurance has denied the Xifaxin... Has anyone been able to figure out a workaround..." + (show)

My Dr wrote the ins. A letter. Treatment is cheaper than hospitalization and or surgery. They now pay for it It needed to be prescribed as a maintenance drug in my case.

tr468 | @tr468 | Jun 16 9:39am

In reply to @azj "Sadly, my insurance has denied the Xifaxin... Has anyone been able to figure out a workaround..." + (show)

There is a canadian pharmacy that sells it for $250. https://www.truecanadapharmacy.com/

marylandbob | @marylandbob | Jun 17 4:58am

Rifaxan is terribly expensive, especially in the US. For 2025, the out of pocket limit is $2,000 (total drug cost for year). My last prescription for Rifaxan was free. Insurance companies will sometimes(often) reject the claim and then your doctor will have to back to them and explain the need, then it goes through. Canadian pharmacies do work as described in other posts.
Lately, I have tried cutting way back on sugar, and using a -Oregano Oil, which is working for me. I got that tip from another comment on this sight. I take three Oregano Oil pills (low cost thru Amazon)/day.(according to what I have found, there are5 different PreKinetic pills that may help with Oregano Oil ceding one.)
I also found (my opinion) that Low FODMAPs vary dependent upon the source and don’t work for everything. Some things on FODMAP are high sugar. Research(again my opinion) are set-up for multiple problems such as IBS, Celiac, SIBO, and IMO and these are not the same. Good luck.

ggr | @ggr | Jun 17 12:51pm

Have you investigated mast cell activation as the root cause of SIBO? My daughter had recurring SIBO until she was treated with mast cell treatment. She was diagnosed at Mayo Scottsdale.

tslayden | @tslayden | Jun 17 3:16pm

Amazingly, Vanderbilt University pharmacist got. in touch with Medicare for me and I got Xifaxin free of charge. If I need it more than once it is good to know about the Canadian pharmacy. (I don’t know how helpful Medicare would for repeat prescriptions).

helenrose | @helenrose | Jun 23 12:31am

In reply to @tslayden "Amazingly, Vanderbilt University pharmacist got. in touch with Medicare for me and I got Xifaxin free..." + (show)

I have Medicare Advantage and they have prescribed xifaxin 3 times so far.

I just pay my co-pay which is $10.

helenrose | @helenrose | Jun 23 12:41am

Does anyone have suggestions what to do after taking xifaxin and neomycin together for 2 weeks?
Also my doctor is having me take xifaxin 2 times a day and neomycin 3 times a day. I have the methane type of Sibo. My doc said the main thing re neomycin is to stay hydrated as it has an effect on the kidneys. Thanks.

supip | @supip | Jun 24 11:21am

My naturopath has prescribed a special garlic extract to be taken twice a day along with the Rifaximin 3 times a day. That will be followed by berberine and neem. After that, I think she has more things in mind. She doesn’t want me to take neomycin because of the risk of permanent tinnitus. She told me naturopaths have been treating SIBO a lot longer than medical doctors.

Beejenigma | @beejenigma | Jun 24 7:07pm

I took the combo of xifaxin and neomycin and it was not changing anything. I finally called toward the end of the treatment and they finally informed me that I have a fructose intolerance! I am now doing the very limited diet of low fructose, gluten free and limited dairy. I am also taking probiotic spores and I was using an essential oil of oregano, clove, and thyme but it made me very dizzy so I am switching to berberine instead.