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DiscussionEssential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: Sep 13 11:13am | Replies (291)Comment receiving replies
Replies to "I also have ET JAK2 diagnosed in June 2023 at age 72. Platelets were higher than..."
mw2023, I was started on HU with platelets in the 600/700s. As I have the MPL driver, it's been a challenge to bring the count down.
But while I'm still not quite there yet, HU has given me my energy back.
This makes a huge difference to my quality of life. It's also really good to know that HU is safeguarding my bone marrow.
In my opinion, when you see your oncologist next week -- discuss starting HU.
While there's some concern about taking HU for 30 or more years, for me at 70 and you at 73 -- this is probably not an issue. For me at least, HU has been a game-changer.
I'm so grateful for all the information. I feel I can have a good conversation with my doc at my next appointment. I'm also on meds for high BP and high cholesterol. At this point I'm symptom free...hope I stay that way for a long time taking the baby aspirin! Take care.