Prolia and Hair Loss

Posted by cat22 @cat22, May 13, 2022

Anyone experience hair loss with Prolia? I would also like to hear about those on Prolia with no issues?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@rks2112

I was reluctant to start Prolia, but decided after a fall breaking my sternum to start it. I am a very healthy 68 year old woman. Walk and Exercise at the gym 3 to 4 days a week. No daily meds except Omeprazole. After a few days of the injection I would have terrible joint pain lasting about a week. After my 2nd shot I came down with an eye infection called Uveitis. It is caused by inflammation in the body. I was on a steroid eye drop for extended time, each time I would stop the drop the infection would flare back up. I took 3 shots of Prolia. Came back down with another eye infection, Steritis. At this time my ophthalmologist told me Prolia is directly related to these eye infections, and the doctors are fully aware of this side effect. I was due for my 4th injection Feb 25. I decided not to take it anymore. I am not using any medication for my Osteoporosis. I have gastritis issues from using Fosamax, so at this point I’ll take my chance on hopefully not falling. The end of April 25, my hair started falling out by the hands full. I have an appointment with the dermatologist, but I began thinking it could be from the Prolia. I went to research this and found this site. Wanted to share all my experiences using Prolia in case this could benefit others.
I appreciate all the information given. Thank you everyone, and best of luck to all.

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Thank you for that. Just one more reason not to use Prolia!
I quit after the 3D shot and am now using Risedronate for about a year now. No side effects! One pill once a week.
My hair is coming back thank goodness!

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@rks2112

Thank you for sharing your information. I have come down with serious eye infections and my ophthalmologist stated the infections are caused by inflammation in the body, and also stated the eye inflammation is directly related to Prolia. He told me next time I have the eye infection we will need to do blood work to find the cause. After receiving his information I decided to stop Prolia, and all other osteoporosis medicine. I also recently stated losing hair by the hands full. Best of luck to you!

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So sorry to hear. Wishing you all the best. My hair started growing back last Oct/Nov after 6 months from my 3rd shot. May have an inch or two starting to come back. It will be a long time before I know if it will ever come back. Currently wearing a wig.
I was changed to Actonel weekly. Hopefully it covers the rebound.

Good Luck!!!

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@findthebrightside

This is my first time posting. To those of you wondering if Prolia caused your hair loss, below I share what I just read on the website, Medical News Today. I was researching information about Evenity, which may be my next move.
........................................................................................
The text is below. It is not allowed to post the URL, but if you want to see it with your own eyes, go to Medical News Today and type in Evenity.

Here is the text I saw, word for word:
Is hair loss a side effect of Evenity?
No, you shouldn’t notice hair loss from Evenity treatment. Hair loss wasn’t a reported side effect in the drug’s clinical trials.
However, other medications prescribed for osteoporosis may cause hair loss. For example, it’s possible for Fosamax (alendronate) and Prolia (denosumab) to cause hair loss.

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Evenity is made by the same folks as Prolia.

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@broken13

Evenity is made by the same folks as Prolia.

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They said the same about Prolia when I first looked in to it.
About a year later they admitted that hair loss was a side effect.
I have since been using Risedronate once a week. So far so good.

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