Replies to While I was thinking further about your post, @phillymom, please find out if your cardiologist is…

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Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (9)

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@walkinggirl

While I was thinking further about your post, @phillymom, please find out if your cardiologist is specially trained in HCM. I never realized that cardiologists have their areas of expertise and interest, nor did I realize how many different cardio conditions there are. If there is a COE (Center of Excellence) not too far away, it will be to your great advantage. @brumasterj thoughtfully posted this link recently - check it out! https://www.4hcm.org/center-of-excellence

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Replies to "While I was thinking further about your post, @phillymom, please find out if your cardiologist is..."

phillymom | @phillymom | 3 days ago

Thank you walkinggirl.

Yesterday I was so short of breath, with pressure in chest & fatigue that I went to Urgent Care on a Saturday. That doctor said my ankles were not swollen much, and heart sounds good. He mentioned that HCM has same symptoms as a valve issue, but the lungs are swollen in back, which mine were not.

So he listened to all valves several times and his opinion was the Mitral Valve has regurgitation and should be evaluated. I do have an Echocardiogram scheduled by the Cardiology department at UW Health in Madison. Same people who never find anything wrong. If they still don't understand what's going on, I will go to Northwestern in Chicago for a 2nd opinion.

Last year I was up in Mayo Clinic for 2nd opinion - same problem. That cardiologist decided I have a left ventricular insuffiency but the pressures are still borderline so it did not meet the threshold for heart failure or HCM. They could not see the left side of Mitral Valve on CT or Echos for some reason, so I passed inspection. They did not recommend any change to my meds or lifestyle given by Internist back home. Waste of time & money up there.

Time for a new 2nd opinion now in Chicago.

Thanks for following this story.

Gail the PhillyMom

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