1. < Digestive Health

Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

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jmmb | @jmmb | Apr 1, 2018
In reply to @pfpurple "Does anyone know of a source list of surgeons with MALS experience? I am in San..." + (show)
@pfpurple

Does anyone know of a source list of surgeons with MALS experience? I am in San Diego and would love to find someone here. I do know of a couple of surgeons in Los Angeles, but I learned of them in very roundabout ways. Would love to know how most people find their surgeons. TIA!

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@pfpurple I can give you some of the names. I know there are quite a few. I will try to get them to you today.

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susanf | @susanf | Apr 1, 2018

Thank you got in to one of the Facebook support groups.

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5 replies
pfpurple | @pfpurple | Apr 1, 2018

Susan, what did you do? I have been waiting for a couple of days. Would you be open to finding the list of surgeons and posting that list here? I am pretty bad off and need to make a decision if I can stay here in San Diego or if I need to make my way up to Los Angeles. I would be so forever grateful!!

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pfpurple | @pfpurple | Apr 1, 2018
In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)
@susanf

Thank you got in to one of the Facebook support groups.

Jump to this post

@susanf , what did you do? I have been waiting for a couple of days. Would you be open to finding the list of surgeons and posting that list here? I am pretty bad off and need to make a decision if I can stay here in San Diego or if I need to make my way up to Los Angeles. I would be so forever grateful!!

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pfpurple | @pfpurple | Apr 1, 2018
In reply to @pfpurple "Does anyone know of a source list of surgeons with MALS experience? I am in San..." + (show)
@pfpurple

Does anyone know of a source list of surgeons with MALS experience? I am in San Diego and would love to find someone here. I do know of a couple of surgeons in Los Angeles, but I learned of them in very roundabout ways. Would love to know how most people find their surgeons. TIA!

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Thank you @jmmb !! I am fading quickly so that would mean the world to me!!

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susanf | @susanf | Apr 1, 2018
In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)
@susanf

Thank you got in to one of the Facebook support groups.

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I got a reply from the Facebook site of MALS Awareness site. Instead of MALS PALS I think the same people are on it. Not positive. But was given the ok to join the group.
Good luck and hope it helps.

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jmmb | @jmmb | Apr 1, 2018
In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)
@susanf

Thank you got in to one of the Facebook support groups.

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@pfpurple the listing is on the MALS PALS page only. Here are most of the LA doctors. UCLA : Deugarte, Jimenez, Quinoes-Baldrich,
Paul Lawrence, Dutson
At Cedar Sinai LA, : Tulloch, Gewertz
Hopefully this gives you a few options. of course it is Dr. in front of the names....
Let me know if you need anything else. These are just names from people that have recommended MALS friendly dr and from where....Good luck to you.
Jill

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Kari Ulrich, Alumna Mentor | @kariulrich | Apr 1, 2018

For those of you who do not have access to facebook this is the update peer recommended physician list. This list is a peer list from MAL PALS and compiled by Robin one of the moderators. MALS PALS is another awesome resource. Here is the link if you would like to join: https://www.facebook.com/groups/105633382202/?ref=br_rs It is awesome to have both groups! Facebook has different privacy settings and updates them frequently. Always know what the terms of use are for all websites you share your personal information on.

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2 replies
pfpurple | @pfpurple | Apr 1, 2018
In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)
@susanf

Thank you got in to one of the Facebook support groups.

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Thank you @jmmb !! You rock. Now I have a list of people to call in the morning. Much appreciated!

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pfpurple | @pfpurple | Apr 1, 2018
In reply to @kariulrich "For those of you who do not have access to facebook this is the update peer..." + (show)
@kariulrich

For those of you who do not have access to facebook this is the update peer recommended physician list. This list is a peer list from MAL PALS and compiled by Robin one of the moderators. MALS PALS is another awesome resource. Here is the link if you would like to join: https://www.facebook.com/groups/105633382202/?ref=br_rs It is awesome to have both groups! Facebook has different privacy settings and updates them frequently. Always know what the terms of use are for all websites you share your personal information on.

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@kariulrich I'm not seeing the list, but maybe I just don't know where to look?

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