← Return to Essential Thrombocythemia: Making treatment decisions

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Profile picture for nohrt4me (Jean) @nohrt4me

I was diagnosed at age 60, but onset of high platelets about age 54. Just on baby aspirin x 3 years because no clots + CALR mutation = lower clot risk. Platelets gradually rose from 600s to near 800, and then started hydroxyurea once a day.

Now age 70 and doing ok with the ET. My dad also had ET. So feel free to ask questions here. Some of us have had this quite awhile and are part if the mysterious family clusters with ET.

Take good care of yourself. When I slack off, I am a trial to myself and others.

PS, I get blood tests every 3 months, but doc may want them more frequently if you start meds.

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Replies to "I was diagnosed at age 60, but onset of high platelets about age 54. Just on..."

@nohrt4me

Hi, I have ET with CALR exon 9 mutation. What do you mean by "no clots + CALR mutation = lower clot risk". Can you explain what CALR mutation is? Thank you.